Thank you for visiting the World Sickle Cell Day (WSCD) website.
Edwige Ebaskisse is who I lovingly refer to as: “The Mother of WSCD.” She is the President of the Sickle Cell Disease International Organization (SCDIO) (www.drepanetworld.org) and the Directrice Générale of Emilie Health & Communication (www.emilie-health.com).
Ms. Ebaskisse, along with many other people have worked tirelessly to make WORLD SICKLE CELL DAY happen! Our Sickle Cell Community thanks each and every one them.
I, Nita Thompson, consider myself, the “Paula Revere” of WSCD. After Allen Platt from Emery sent out an email that there is a World Sickle Cell Day, I just did and continue to do all that I can do to let everyone know!!!
We will continue to assist, by inviting our Sickle Cell Community to join in and share their individual WSCD activities, events, pictures, etc.
* Please right click on any of the flyers to copy and paste or download the PDF.
**Please let others know about this website, so they can benefit from the information.
We ask that you please email us what you are doing and your pictures,
so we can post it/them on this site and share it for all the world to see.
A bit of factual information:
World Sickle Cell Day and Sickle Cell Disease Awareness Month are NOT the same.
World Sickle Cell Day is celebrated on June 19th of each year, is recognized globally and was created by the United Nations by resolution. People will celebrate it on different days and in different ways, because the next time June 19th will be on a Saturday is in 2021!
In the United States, Sickle Cell Disease Awareness Month is in September, however, it's not recognized in every state, and is not recognized globally! It is created by State representatives voting to recognize it in their individual state.
World Sickle Cell Day and Sickle Cell Disease Awareness Month are not recognized globally, yet!!!
Thus, our work continues . . . .
Through advocacy of the Sickle Cell Disease International Organisation (SCDIO), the support of the Republic of Congo and the Republic of Senegal, and the commitment in the scientific world, the African Union (in 2005), the UNESCO (2005), WHO (2006), and the United Nations (2008) recognized sickle cell disease as a public health priority. The 19 of June, has been chosen to celebrate every year the World Sickle Cell Day in order to raise awareness of the disease in the world.
Important frameworks for cooperation and partnership, these recognitions should lead to more concrete actions and are to be supported by strengthened partnerships at national, regional and international levels.
Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. It is present on four continents: in sub-Saharan Africa and in the Maghrib, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil,Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). It is estimated that 500.000 are born every year with this severe and invalidating condition and that 50% of them will die before the age of 5 years. Trans-continental, SCD is also trans-ethnic and affects black populations from African origin and Arabic, Indian and Caucasian populations from Southern Europe.
United Nations A/63/L.63
General Assembly Distr.:Limited
18 December 2008
Agenda item 155
Recognition of sickle-cell anaemia as a public health priority Angola, Austria, Belgium, Benin, Brazil, Cameroon, Cape Verde, Central African Republic, Comoros, Congo, Côte d’Ivoire, Democratic Republic of the Congo, Djibouti, France, Gabon, Ghana, Monaco, Senegal,
Recognition of sickle-cell anaemia as a public health problem
The General Assembly,
Recognizing the need to promote better physical and mental health, bearing in mind the Universal Declaration of Human Rights1 and other relevant human rights instruments,
Welcoming World Health Assembly resolution WHA59.20 of 27 May 2006 and resolution 33 C/22 of the General Conference of the United Nations Educational, Scientific and Cultural Organization of 19 October 2005, and taking note of decision AU/Dec.81 (V) adopted by the Assembly of the African Union at its fifth ordinary session, held in Sirte, Libyan Arab Jamahiriya on 5 July 2005,
Recognizing that sickle-cell anaemia is one of the world’s foremost genetic diseases, that it has severe physical, psychological and social consequences for those affected and their families, and that in its homozygote form it is one of the most lethal genetic diseases,
Aware of the need for greater international cooperation, including through partnerships, to facilitate access to education, management, surveillance and treatment for sickle-cell anaemia,
Recognizing that proper management of sickle-cell anaemia will contribute to an appreciable decrease in mortality from malaria and in the risk of HIV infection,
Recalling the Abuja Declaration to Roll Back Malaria in
Taking note of the reports of the first, second and third international congresses of the Sickle-Cell Disease International Organization, held in Paris on 25 and 26 January 2002, in Cotonou from 20 to 23 January 2004 and in Dakar from 22 to 24 November 2006, respectively, and the report of the first global consultations on sickle-cell anaemia, held in Brazzaville from 14 to 17 June 2005,
Recognizing that education, information and communication technologies should play a crucial role in preventing sickle-cell anaemia and that there is an urgent need to create effective research and training programmes in the countries most affected by this disease,
1. Recognizes that sickle-cell anaemia is a public health problem;
2. Underlines the need to raise public awareness about sickle-cell anaemia and to eliminate harmful prejudices associated with the disease;
4. Encourages Member States, as well as United Nations agencies, funds and programmes, international institutions and development partners, to support health systems and primary health-care delivery, including efforts to improve the management of sickle-cell anaemia;
5. Invites Member States, international organizations and civil society to support the efforts being made to combat sickle-cell anaemia, including as part of health-system strengthening efforts, in the various development programmes, and to encourage basic and applied research on the disease;
6. Urges the Member States in which sickle-cell anaemia is a public health problem to establish national programmes and specialized centres for the treatment of sickle-cell anaemia and to facilitate access to treatment;
7. Requests the Secretary-General to bring the present resolution to the attention of all Member States and organizations of the United Nations system.
1 Resolution 2/7 A (III).
2 See A/55/240/Add.1, annex.
June 19 World Sickle Cell Day
The World Health Organization (WHO) has started work to promote a world wide agenda to address hemoglobin dysfunctions.
WHO has made a commitment to:
· Recognize that sickle cell disease is a major health issue.
· Increase awareness of the world community regarding sickle cell disease.
· Eliminate harmful and wrong prejudices associated with sickle cell disease.
· Urges member countries where sickle cell disease is a public health problem to establish health programs at the national level and operate specialized centers for sickle cell disease and facilitate access to treatment.
· Promote satisfactory access to medical services to people affected with sickle cell disease.
· Provide technical support to all countries to prevent and manage sickle cell disease.
· Promote and help research to improve the lives of people affected with sickle cell disease.
The World Sickle Cell day is celebrated across the globe with special emphasis in African Nations and Asia. The celebrations include a press, media campaigns, music shows, cultural activities, and talk shows.
The main emphasis is hence on educating medical professionals, care givers, and associated personnel about prevention, research, and resources to minimize the complications due to sickle cell disease. Hence June 19th is devoted mainly to spread awareness, through talks, seminars, pamphlets, literature and consultations.
This web site is created to encourage and share our Global World Sickle Cell Day Communities Cell-a-bration information and activities.
To learn more about Sickle Cell Anemia/Disease/Trait and how you can help those diagnosed, please visit :
Feel free to email me, Nita T. at: AA4SCDAwareness@aol.com
Please help me contunue to help our SC Community!!!
ALWAYS remember that this is NOT a "ME" thing, it's a "WE thing!!!
Nita Thompson, Chair
African American Blood Drive and Bone Marrow Registry for Sickle Cell Disease Awareness